Useful links

There are many charities providing help and information for people affected by dementia.

National organisations

Alzheimer's Society
Offers advice and support for people with all forms of dementia and their families and carers.

Alzheimer's Scotland
Provides services and campaigns in Scotland to help people with dementia and their families and carers.

CANDID - Counselling ANd Diagnosis in Dementia
Includes information specifically written for younger people with dementia.

for Dementia
An initiative to promote and develop Admiral nursing - a specialist nursing intervention focused on meeting the needs of carers and supporters of people with dementia.

Help the Aged aka AgeUK
Help the Aged campaigns for change in government policy, undertakes research into the needs of older people and provides local services in communities across the UK and overseas.

Parkinson's Disease Society
Some people with Parkinson's do develop dementia.  The Society offers information, advice and support for people with Parkinson's and their families.

MHA
A National Charity providing housing and care for older people throughout the UK offering specialist care for those living with dementia and their families.

Dementia research

Alzheimer's Research Forum
A US website that reports on the latest scientific findings in Alzheimer's research.

Alzheimer's Research UK
The AR Network promotes collaboration between the UK's top centres for dementia research.

Dementias and Neurodegenerative Diseases Research Network (DenDRoN)
Facilitates the conduct of randomised prospective trials and other well-designed studies of dementia including those for prevention, diagnosis and treatment.

International Journal of Epidemiology
Publishes the latest advances in this area of research which studies populations to find out about disease patterns and risk factors.

Journal of Alzheimer's disease
Publishes international results from research into the causes, disease progression, distribution, genetics, behaviour, treatment and psychology of Alzheimer's.

Stirling University Dementia Services Development Centre
Our staff of academics, health and social care professionals, researchers and event organisers provide comprehensive dementia education and training, consultancy and research services.

Wales Dementias and Neurodegenerative Diseases Research Network (NEURODEM Cymru)
Aiming to develop a close mutually beneficial collaboration between research, health and social care.

Related resources

Association of Medical Research Charities
The Alzheimer's Research Trust is a member of this organisation which represents the UK's leading charities that fund medical research.

BBC News online health news and BBC Radio 4
Are useful resources for up-to-the-minute health news and a search facility to help you find out about the latest advances in Alzheimer's / Dementia research.

Brain Skills
Provides information on keeping your mind active and how the brain works and develops.

Charity Facts
Offers impartial information on how to give to charity and what to look for in the organisations you support.

Dementia Adventure
Offers holiday breaks and adventure for dementia sufferers and their carers.

Guidestar
Provides comprehensive information on all charities in England and Wales.

Much Loved
This is a tribute website, where people can set up memorial pages for friends and loved ones who have passed away.  The Alzheimer's Research Trust is a Much Loved partner.

National Institute for Health and Clinical Excellence (NICE)
Provides national guidance on promoting good health and preventing and treating ill health.  Publishes guidance on the appropriate treatment and care of people with Alzheimer's disease.

Trials in Mental Health
Provides information about mental health research.  It gives good advice on what clinical trials are, how you can get involved, what your rights are, and what you should expect.  It also has a database of current mental health clinical trials.

The Mede - Guest House
This is a guesthouse that offers holidays for people suffering from dementia, along with their carer.

Organisations who can provide expert advice on the provision of care in the UK

General Organisations

Commission for Social Care Inspection
Aka Care Quality Commission - 03000 616161

Counselling Directory
This website is a support network of UK counsellors and psychotherapists, with information on their training and experience, areas of counselling, fees and contact details. This service is free, confidential and easy to use.

Non-UK web sites / organisations

Alzheimers Speaks is an American based site trying to do a similiar thing to us.  You may find something of interest there to you.

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Stop Press:

Dementia Friendly Communities

Various bodies, both government and others are promoting the setting up of dementia friendly communities.  To see what's involved and how you can be part of it, go to our dementia friendly communities page.  You can also read this PDF document (1.5MB)

Service Above Self

It is with much pleasure that we announce that the Chair of REPoD, Dr. Geri Parlby, has been awarded the 'Rotary International Service above Self Award' for her outstanding contributions to the REPoD effort over the 6 years since its inception.  We feel that all who know her will feel that this award was well deserved.

Hands across the water

The REPoD message is spreading and not just within the UK.  Read this email extract from a couple in Washington DC.

Funding dementia research

The government has announced an increase into funding dementia research.  Dementia research funding set to rise to £66m by 2015. - BBC News web site

Dementia Adventure

Looking for a break / holiday for someone you care for or yourself - then take a look at this web site.

RIBI Conference 2011 - Speech

This is a PDF transcript of the speech given by Geri Parlby about dementia and REPoD's activities at the RIBI Conference in Dublin.

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